I saw my rheumatologist today. Told her everything that has been going on lately. I told her I haven't had a good day since my last infusion. I asked her about a possiblity that I might have another autoimmune disorder, but she didn't think so. She said she had one other patient that had similar syptoms after getting Remicade and it turned out she had a reaction to Remicade. So she ordered some kind of "antinuclear"(?) blood test. She said I could have had an infection when I got my last treatment and it could have exasterbated from there. So today, I got a Solumedrol infusion, blood work, another urine test, and some specialty blood work that has to be sent out for testing. My ultrasound results weren't in, so I'll find out about that next week. My next Remicade infusion has been moved up to next week on Wednesday the 30th. At this point, I don't know if I want another one!
Basically I left the doctor's office more confused than ever and getting no definitive answers. On top of that they missed my vein trying to get the IV going. She went at it again and it hurt like hell, almost like it hit a nerve. EEEEOOOOWWW! I've never had one hurt like that before. That's going to leave a mark!
Soooooo..... I don't know a damn thing about what is going on with me. At least yesterday things went well at the Social Security office. Got in and out of there smoothly. I had all the information needed and the lady was nice and helpful. I have enough work credits to apply for disability. I also qualify for SSI. I just have to wait to see if I'm approved. Sherry had to drive me because my right wrist, my knee and my neck was hurting. It was a good thing I was having a bad day since I was applying for disability...
I didn't make it to the Crawfish festival. We're going to try again this weekend. (the last weekend for it) I did make it over to visit my Dad on Sunday. I had a nice visit. It was good to see the family. My niece and nephew are getting so big. Megan looks just like her mom but lighter hair and John looks just like my brother when he was little. They're both so cute. Krystal is ready to have the baby. Actually she should have it today! Aliyah is getting big too. Such a pretty little girl.
Well, I need to check and see how Krystal is doing.
That's about it for now. Except, I miss my friends and miss working!
Hmmm...
I am 40-something, and still searching for my place in this world. Being diagnosed with Rheumatoid Arthritis has made that search even more difficult and confusing. I was always a very active and independent person. I never liked to ask anyone for help. I enjoyed accomplishing things on my own. Now I HAVE to ask people for help. This disease is very humiliating and disabling.
I am trying to find a way to deal with all of this and continue with my life. I seldom have good days anymore. Each day has it's struggles, whether they be physical or emotional. I have been isolating myself from family and friends for different reasons. I feel like I am not the person I used to be and I don't want them to see how I've gone downhill. I don't want to burden them with my issues or discuss my health problems with them. I mean come on, how boring is that? Sometimes the pain is so bad that I don't feel like doing anything, or even talking with anyone. I have the need to let things out and this avenue gives me the chance to do so.